Understanding through knowledge
Knowledge through understanding
What is Acromegaly?
Acromegaly is a hormonal disorder that results from too much growth hormone (GH) in the body. The pituitary, a small gland in the brain, makes GH. In acromegaly, the pituitary produces excessive amounts of GH. Usually the excess GH comes from benign, or noncancerous, tumours on the pituitary. These benign tumours are called adenomas.
Around three to four out of every million people develop acromegaly each year and about 60 out of every million people suffer from the disease at any one time.Read more
Medicines
If you have been diagnosed with Acromegaly then medicines will have become a part of your life....
Treatments
The surgical removal of the tumour is normaly the first line of attack, followed by radiotherapy....
Related Conditions
In addition to the general malaise associated with Acromegaly, there are a number of related conditions..
My Story
A few years ago after a period of undefined illness, I was diagnosed with a rare medical condition called Acromegaly
I knew it was too good to be true. At one point my endocrine specialist used the words 'almost cured'. Then.....
Other Stories
Susan wrote to me several years ago when there was much less information available on the web, or anywhere else (updated)
Your Stories.
We want your stories. The stories behind the conditions. How has acromegaly affected your life or the lives of the people around you?
Acromegaly People
We are unforgettable if nothing else. Who can forget Richard Kiel (Jaws), Rondo Hatton (actor) or David Prowse (green cross code)
There's no doubt that a funny side does exist and if we can't laugh at ourselves then it's worse than we thought,
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